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JonRoz
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Posted 6 Years, 1 Month ago permalink
we are looking for any radical or experimental theories or treatments for the above. Our son, 8 weeks old, has poor prognosis, following aortic valvectomy and catheter balloon operations. No further surgical options are considered viable and we are looking for ANY thoughts that would be able to help.
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JonRoz
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Posted 6 Years, 1 Month ago permalink
test
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JonRoz
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Posted 6 Years, 1 Month ago permalink
Many thanks for your reply. Our son is in the care of the royal Brompton
Hospital cardiology consultants and surgeons. Can you suggest any other teams we might try?
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JonRoz
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Posted 6 Years, 1 Month ago permalink
thankyou for replying. yes,
Ross procedure considered but ruled out due to both right and left ventricle damage. Also, severe pulmonary hypertension and general instability - 6 weeks in PICU.

If you have any further thoughts please contact us asap.
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fC
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Posted 6 Years, 1 Month ago permalink
Just want to say that The Royal Brompton is a renowned heart/lung hospital. I doubt that better/different treatment would be available elsewhere. Your son is in very good hands. I believe there is another good heart hospital in Oxford but many people are referred to
"the Brompton" when other hospitals have done their best. I sincerely hope that an answer can be found for him. Diana
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